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Resources for Siblings

Organizations

Sibling Leadership Network: siblingleadership.org
Provides siblings of individuals with disabilities tools to advocate for their sibling and for issues important to their family.

Sibling Support Projectwww.siblingsupport.org
A national network to provide support to siblings of people with disabilities. Sibling support workshops (SIBSHOPS) are available throughout the country.

National Down Syndrome Congress for ADULT SIBLINGS: www.ndsccenter.org/adult-siblings

Books

47 Strings: Tessa's Special Code-
Carey, Becky (Little Creek Press, 2012). A big brother learns about his little sister’s special code. A book to help explain Down syndrome to young children.

Fasten Your Seatbelt-
A Crash Course on Down Syndrome for Brothers and Sisters
Skotko, Brian and Susan Levine (Woodbine House, 2009). Uses a question and answer format to address questions from teens who have a sibling with Down syndrome.

Sibshops-
Meyer, Don and Patricia Vadasy, revised edition (Brookes Publishing, 2008). A guide to organizing workshops for siblings according to the SibShop model.

Special Brothers and Sisters-
Hames, Annette and Monica McCaffrey, editors (Jessica Kinsgley, 2005). Accounts from real-life siblings of children with special needs.

Special Siblings-
McHugh, Mary, Revised Edition (Brookes Publishing, 2003). Interviews with more than a 100 siblings and experts.

The Sibling Slam Book-
Meyer, Don, editor (Woodbine House, 2005). Eighty teenagers talk about what it is like to have a brother or sister with special needs.

The Sibling Survival Guide-
Indispensable Information for Brothers and Sisters of Adults with Disabilities
Meyer, Don and Emily Holl, editors (Woodbine House, 2014). Advice for siblings on topics ranging from communication to medical and legal issues.

Views from Our Shoes-
Meyer, Don, editor (Woodbine House, 1997). Essays from children who have a sibling with a disability.

We'll Paint the Octopus Red-
Stuve-Bodeen, Stephanie (Woodbine House, 1998). A little girl prepares to welcome her new baby brother with Down syndrome. Ages 3-7.

Your Loved One is Having a Baby with Down Syndrome-
When you learn that someone you love is expecting a baby with Down syndrome, you naturally have concerns, and wonder what to say and do. This book will help you through your initial, normal reactions of sadness, shock, and worry, and give you the information and perspective you need to welcome a baby with Down syndrome.