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National Organizations

National Down Syndrome Society: www.ndss.org

National Down Syndrome Congress: www.ndsccenter.org

Global Down Syndrome Foundation: www.globaldownsyndrome.org

LuMind Down Syndrome Research and Treatment Foundation: www.dsrtf.org

Down Syndrome Education USA: www.dseusa.org

Down Syndrome Education International: www.downsed.org

Special Olympics: www.specialolympics.org

Best Buddies: www.bestbuddies.org

Spread the Word to End the Word: www.r-word.org

Boston Children's Hospital: Down Syndrome Program, Allen C. Crocker Speaker Series

Local Regional Centers

Regional Center of the East Bay: www.rceb.org

Golden Gate Regional Center: www.ggrc.org

San Andreas Regional Center: www.sarc.org

North Bay Regional Center: www.nbrc.net

Bay Area Family Resource Centers

Family Resource Centers provide parent to parent support, outreach, information and referral services to families of children with disabilities and the professionals who serve them.  All centers serve families of children from birth to three years of age, and many have enhanced funding which allows them to serve families of children over the age of three and individuals with developmental disabilities. 

Matrix Parent Network & Resource Center, Novato: (415) 884-3535, (800) 578-2592, www.matrixparents.org

Parents Helping Parents, San Jose: (408) 727-5775, www.php.com

Family Resource Center, Burlingame: (650) 259-0189, www.communitygatepath.com

Family Resource Network, Oakland: (510) 547-7322, www.frnoakland.org

Support for Families of Children With Disabilities, San Francisco: (415) 282-7494, www.supportforfamilies.org

CARE Center for Access to Resources and Education, Martinez: (925) 313-0999, www.contracostaarc.com

Additional Links

Case Advocacy- A local legal organization providing families with resources and consultations: www.caseadvocacy.org

Wrightslaw- Accurate, reliable information about special education law, education law, and advocacy for children with disabilitieswww.wrightslaw.com

Woodbine House- Source for books on disabilities: www.woodbinehouse.com